Doctors appointments are like buses, there isn’t any insight then 2 come along.
These past few weeks Teddie has seen a countenance specialist & has had an assessment at EWMHS (Emotion wellness mental health service) with the aim of being offered a desensitising programme for is anxieties.
Unfortunately, the countenances specialist could not offer this programme but gave us lots of helpful tips to work on while we wait for Teddie to receive a program.
I was very doubtful Teddie would be offered a program with EWMHS as during his assessment all that was mentioned was social stories.
“Have you tried using social stories?
How I didn’t leap over the table for this woman I really do not know so I repeated what she had said in case I had misheard her. She then started to tell me what a social story was, I interrupted her mid-sentence and said, although I appreciated her professional opinion and a description of what a social story is Teddie was past the stage of using social stories.
I completely appreciate people study or train for years to do the job there in but unless you live with an ASD child YOU HAVE NO IDEA. It’s bloody hard work & it’s a 24/7 job, not a 9-5 job where you can leave the stress of a hard day behind you.
During our appointment, I made it clear I was not the type of parent that takes No very well. I had my professional head on and at times was as qualified as she was. So when she has the audacity to ask me if we have tried social stories I took that as an insult. Teddie will be getting on the program as he bloody needs it.
However, I am overjoyed to say I received a letter this week from EWMHS offering Teddie a desensitization program.
I’ve come to the conclusion that the only people parents can rely on are ourselves, we have to fight at every corner to get what our children need. I know I’m to the extream but honestly, I don’t know where Teddie would be if I wasn’t.
What is a desensitising programme & how does it work?
A desensitising programme is a type of behavioural therapy that can be used to help children or adults with ASD & Asperger’s syndrome effectively overcome phobias and other anxiety disorders.
There are many stages of a desensitising programme.
- COPING STRATEGIES– Assess the child’s sensitivities, to find out how severe they are.
- PROGRESSIVE EXPOSURE– A gradual exposure to the feared object.
- Desensitization works best when the child feels comfortable and empowered
- Find the thing that upsets the child.
- Allow the child to experience the object in a non-threatening way.
- Listen to any concerns they have, and reassure them as best as you can.
For Teddie, his anxieties affect him more than his inability to communicate (although his speech has come on leaps & bounds) These fears hinder him daily especially using the toilet. This is our main focus however the programme will cover a wide spectrum of Teddies fears with the end result of helping Teddie to access toilets throughout his day.
We have no idea whether this program will help Teddie with his fears all we can do is try.
We will continue to be Teddie’s voice and will always fight for what we believe in.
We love our bear and wouldn’t have him any other way.
2 thoughts on “Desensitization program…..”
Hi, you sound such an amazing fighter for your son – I had never heard of this so found it very interesting.
I also note that you say your sons speech is coming on well. I just wondered what strategies you felt had had the most impact on his speech? Whilst I appreciate every child is different so no same strategies will work for all, I would just be interested in your experience.
Congratulations on continuing to fight for access to the best resources and for sharing xxx
Since our journey began we have had to fight for everything.
Teddie speech has come on so much it’s unreal. He is using 3-4 sometimes 5-word utterances we can now hold a conversation with him.
We started using PECS with Teddie when he was 3- this was a life saver for us more than him.
Teddie also uses Gemiini, this is amazing and is the main reason Teddie is speaking today.
For Teddie, visual is everything he needs to see it in picture or video format before he can process it. Socially Gemiini was truly amazing it was a real turning point for him with making friendship groups.
If you need any more info on the above I am happy to help. xxx