It’s just not good enough!!

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As the whole house was fast asleep last night (dogs included) I was wide awake annoyed about this letter we received!

Just short of a year ago Teddie was referred to CADU (child assessment & development unit) 11 months later we are still no further forward with no appointment in sight as the commissioning of the child Assessment & Development unit has temporarily been put on hold. 

How the hell can that be possible, how can children be made to wait that long only to be told the service has been put on hold because they want to make cuts, for a child to wait that long surely that shows a need for the unit??

I understand there is a process children have to go through in order to receive a diagnosis but why can’t the child’s paediatrician just be able to give a diagnosis, after all the referral has to come from them, surely they are more than qualified?

The level of special needs care in our area is nothing short of diabolical!
2.5 years ago a referral was made for Teddie to see speech and language, in all that time Teddie has only ever received one group course covering a 6 week period (once a week)

I introduced Pec off my own back having covered it while studying. Teddie see’s a therapist once in a blue moon but only to see what level of PECs he is working towards. We are very lucky Teddie’s school are on the ball with PECS, they are enjoying using it and have witnessed Teddie’s confidence grown since he started in September. 

Teddie’s paediatrician called this week and has asked to see him again this month. I wonder if she’s aware we are still no further along then the last time we saw her a year ago.
With no appointment in sight and Teddie getting closer to being 5 we will need a new referral as CADU only see children under 5, I can only guess how long the wait is for that!!

It goes without saying Teddie has a label of special needs as he is unable to Communicate but at times I feel Teddies been handed the shit stick, he has slipped through every net there is, I feel the system has completely let Teddie down!

In my opinion, I don’t think Teddie is aware he’s any different- he’s so confident & never hides from life- for that, I am in awe of him! 

Having a label does not define you, you are who you so embrace it, I know Teddie does!

 

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